This event is made possible by sponsorship from organisations including pharmaceutical companies, med tech companies and service providers none of which have influenced the event content or the choice of speakers. Sessions delivered with input from these organisations will be marked as such on the programme once released and a list of all sponsors and exhibitors will be published shortly.
Myotonic Dystrophy Support Group
Myotonic Dystrophy Support Group is a registered charity, founded over 34 years ago We offer the hand of fellowship to those with myotonic dystrophy, their families, carers and friends. Myotonic Dystrophy is a genetic progressive neuromuscular condition, to which at present there is no treatment. Can affect and be passed on by both sexes. Onset can be at any age from birth (congenital) to late adult. It can affect every muscle in the body. Caution is necessary with anaesthetics and sedation. Mobility problems, extreme tiredness, poor fine motor control, indistinct speech, swallowing, abnormal heart rhythm are all common symptoms.
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