GLUT1 Deficiency UK

GLUT1 Deficiency UK is a non-profit family led charity dedicated to improving the lives of those in the GLUT1 Deficiency community through its mission of:

• Increasing awareness of GLUT1 Deficiency
• Improved education of families and health professional in relation to GLUT1 Deficiency
• Advocacy for families and patients impacted by GLUT1 Deficiency
• Support and funding for GLUT1 Deficiency research

As the GLUT1 Deficiency community within the UK and Ireland grows it has become clear a dedicated charity is needed to support parents and carers of GLUT1 Deficiency children and adults. We are a small but dedicated team of parents from across the UK and Ireland who have come together to provide compassion, support and education in raising awareness of this rare condition.

For many years we have relied on support from the GLUT1 Deficiency Foundation in the US and support from Matthews Friends Ketogenic Therapies Charity based here in the UK. Both charities have enabled us to bring our families together to share experiences and meet with GLUT1 Deficiency experts from around the world. We recognised an increasing need for support within the UK and Ireland. This is why GLUT11 Deficiency UK was created.