Myotonic Dystrophy

Project Info

Contact mdsg@tesco.net
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Project Description

Myotonic Dystrophy Support Group offers the hand of friendship, assistance, support and information to those affected by Myotonic Dystrophy, their carers and their families. A genetic, progressive, neuromuscular condition that affects either sex from either sex, for which currently there is no cure. Onset can be birth (congenital), teenage or in adult life. Currently celebrating its 27th year of Annual Conferences, MDSG was founded by Margaret Bowler, when seeking families with the same almost unknown condition as her husband and son. It is a registered charity and Company Limited by Guarantee, run by Trustees, area contact people and volunteers.

Stand number: G07